Caring for a Spouse with Dementia at Home: Available Options and Tips

Supporting a spouse with dementia at home can be a challenging but rewarding journey. This article explores various options and provides practical advice for managing caregiving responsibilities, maintaining your own well-being, and ensuring the best quality of life for both you and your spouse.

Understanding Dementia Care Options

When caring for a spouse with dementia at home, there are several options to consider. The most common approach is the utilization of at-home caregivers, who can provide personalized care and assist with daily tasks. Other options include placing the spouse in a medical facility that offers 24/7 round-the-clock medical care. However, this can be more expensive and less flexible.

Respite Care and In-Home Caregivers

Respite care and in-home caregivers are valuable resources for maintaining care at home. Respite care involves temporary relief, which might be needed when you need a break or when your spouse has more demanding days. In-home caregivers provide ongoing support and assistance.

For example, if financial constraints allow, hiring a home care service is often the best option. My family once relied on family members for a year, but when the condition worsened, we turned to a trusted friend who provided care for 2.5 years. Unfortunately, as the condition continued to deteriorate, professional caregiving became necessary, leading to our spouse’s admission to a nursing facility.

Accepting Community and Professional Support

It is crucial to accept help from friends and community resources. Regular breaks and outings are essential for both you and your spouse. Encourage friends and relatives to offer their assistance, and be proactive in seeking out community services and supports.

For instance, if someone offers to help with lawncare, cleaning, or cooking, accept it gratefully. These tasks can be overwhelming when dealing with a spouse in decline. Engaging in activities like attending church, community events, or even relaxing at the movies can help reduce stress and improve your mental health.

Case Study: A Family in England

My brother John and his wife Hattie, who lives in England, experienced a similar journey. Hattie was diagnosed with dementia 6 years ago, but John was able to manage the situation at home initially. As the condition progressed, John hired a home care worker to assist with domestic responsibilities, while he and their two adult children continued to help.

When the need for professional care became crucial, both John and Hattie were admitted to a care home in Southampton. They sold their home to pay for the care, but this decision provided a more structured and medically supportive environment for Hattie.

Conclusion

Caring for a spouse with dementia at home involves careful planning and consideration of various resources. Utilizing respite care, in-home caregivers, and professional support services can help make this journey more manageable. Remember to prioritize your own well-being and seek community and professional assistance when needed.