Managing Rare Autoimmune Conditions: My Journey with Ulcerative Colitis and Celiac Disease

Autimmune conditions can be a challenging journey, as they often come with varied and sometimes complex symptoms. In my case, I have been dealing with a combination of rare autoimmune conditions including ulcerative colitis, celiac disease, mixed connective tissue disease, systemic lupus, fibromyalgia, Sj?gren’s syndrome, irritable bowel syndrome (IBS), and chronic kidney disease. Despite this daunting list, I have found several strategies to help manage these conditions effectively.

Interleukin-10 Inhibitors and Immune-Related Conditions

Interleukin-10 (IL-10) inhibitors, such as Benlysta (belimumab), have shown promise in treating autoimmune conditions like systemic lupus and mixed connective tissue disease. My experience with Benlysta, delivered in the form of a weekly subcutaneous injection, has been mixed. It has been helpful in suppressing inflammation but comes with potential side effects, including weight gain, anger issues, and a strong immune response.

Helminthic Therapy: My Unconventional Approach

One unconventional but surprisingly effective method I have found is through the use of Helminthic Therapy (HT). This involves the introduction of parasitic worms, such as Necator americanus (hookworms), to manage autoimmune conditions. My experience with hookworms has been quite enlightening. Using a combination of 25 Necator americanus larvae every five months and applying them to my skin has kept my conditions in remission as long as the colony remains healthy.

However, the success of this therapy hinges on maintaining a healthy colony. When they age out, around six months, I experience a return of my symptoms. In such cases, I revert to a highly restricted diet to manage the flare-ups. Notably, this therapy has also helped me overcome my celiac disease. Initially, it was an insurmountable condition for me, but now I can consume gluten without issues.

The Helminthic Therapy Support Group on Facebook, which hosts a comprehensive wiki filled with user-discovered information, has been a significant resource for individuals facing similar challenges. This support network has proven invaluable in navigating the intricacies of managing these complex conditions.

Chronic Pain and Inflammation Management

Managing the inflammation and chronic pain associated with these conditions is a continuous challenge. Here are some strategies that have proven beneficial for me:

Anti-Inflammatory Diet

Adopting an anti-inflammatory diet rich in natural foods and spices can help reduce inflammation. Some key ingredients include pineapple, ginger, spinach, kale, cilantro, turmeric, coconut oil, and apple cider vinegar. The list of anti-inflammatory foods is extensive, and resources like a simple online search can provide additional insights.

Cryotherapy

Cryotherapy is another unconventional but effective method I have adopted. It involves undergoing weekly whole-body cryotherapy sessions. Stepping into a temperature-controlled freezer that reaches -177 degrees Fahrenheit for 3.5 minutes triggers an intense body response. The rush of blood to vital organs and the subsequent warming back up process burn approximately 600-700 calories and release endorphins, providing a mental reset and significant reduction in pain.

Yoga

Yoga has been instrumental in maintaining flexibility and reducing pain. Practicing low impact yoga poses that stretch and hold for 3-5 minutes has helped me regain mobility in my body. Yoga sessions have not only provided physical benefits but also mental resilience, allowing me to recover from the pain and stiffness that often accompany autoimmune conditions.

Conclusion

While managing a myriad of autoimmune conditions can be overwhelming, finding the right combination of strategies can significantly improve the quality of life. From unconventional therapies like Helminthic Therapy to mainstream practices such as diet and exercise, there are numerous avenues to explore. The journey is ongoing, and what works for one person may not work for another. However, sharing experiences and knowledge within supportive communities can provide invaluable insights and guidance.