Navigating Autism Diagnosis and IQ Scores
Navigating Autism Diagnosis and IQ Scores
Autism is often a journey of understanding one's unique self. Many individuals with autism recount the experience of being formally assessed and diagnosed. This process can be both enlightening and challenging, particularly when it involves IQ scores. Here, we explore the roles that assessments and IQ scores play in diagnosing autism and share insights from personal experiences.
Formal Diagnosis and IQ Scores
IQ is not typically a part of a formal autism diagnosis. The criteria for diagnosing autism primarily focus on social communication, repetitive behaviors, and sensory issues. However, many individuals with autism do take IQ tests, and the results can provide valuable information about their cognitive strengths and weaknesses.
A Personal Experience
I am autistic and was formally assessed and diagnosed by a neuropsychologist at the age of 12, around 2010. The original diagnosis was Asperger syndrome, which later changed to autism spectrum disorder (ASD) when the revised diagnostic criteria were implemented in 2013. It's interesting to note that many individuals with high-functioning autism may take IQ tests, but these scores are not necessarily a part of a formal diagnosis.
IQ Scores and Their Impact
IQ scores can be confusing, especially when interpreting them in the context of autism. For instance, many individuals report inconsistent IQ results across multiple tests. It's important to understand that IQ scores are just one measure of intelligence and may not fully capture an individual's unique abilities.
Another Personal Experience
An individual who was recently diagnosed at the age of 60 shares her experience. She was assessed and diagnosed with ASD, but no IQ result was mentioned in her report. She has taken IQ tests that yielded scores of 135 and 79, but she finds that her skills do not align with these scores. This highlights the fact that IQ tests may not be an accurate representation of intelligence, especially in the context of autism where strengths can often be starkly different from traditional cognitive assessments.
The Challenges and Benefits of Masking
Another individual, diagnosed at the age of 2 in 1988, shares a powerful narrative. This individual was initially misdiagnosed as mentally challenged and recommended for institutionalization. However, with the support of their family, they were given a new diagnosis and have since matured in ways that defied the early prognosis. They express a mixed sentiment about masking, noting that while it can help in certain social situations, it can also be physically and mentally taxing.
Conclusion
Autism is a journey of self-discovery, and assessments and IQ scores play a significant but evolving role in that process. While IQ tests can provide insights, they are not the only or the ultimate measure of intelligence or abilities. It is crucial to approach these assessments with an open mind and to consider the individual's unique experiences and challenges.