Navigating the Conversation About DID: Confidentiality and Diagnosis

Introduction

Discussing dissociative identity disorder (DID) with others is a sensitive and intimate matter. With DID, one may have multiple identities or personalities that take control at different times. This complex condition often comes with other mental health challenges such as depression, anxiety, and post-traumatic stress disorder (PTSD). It's important to approach the conversation with care and consideration.

Understanding DID and Its Complexity

DID is a severe and rare dissociative disorder. It involves the presence of two or more distinct identities or personality states that continuously influence behavior and consciousness (APA, 2013). Other mental health conditions frequently co-occur with DID, making it a complicated and sensitive discussion.

It is crucial to understand that DID is not a condition that can be 'self-diagnosed.' A diagnosis should only be made by a qualified mental health professional who can provide a comprehensive evaluation and integrate various diagnoses associated with DID. Early in my journey, my mother's premature announcement about my sister's condition led to years of untreated schizophrenia. This underscores the importance of waiting for a formal diagnosis and acting on accurate information.

Guidelines for Discussing DID

Even if you are certain about someone possibly having DID, it is important to seek confirmation from a mental health professional. If you do speak about it, follow a few key guidelines:

Wait Until You Know for Sure

Many conditions can cause dissociative episodes, and these may not be the same as DID. Without a confirmed diagnosis, it is best to wait before sharing concerns. This is a serious matter, not something to be guessed about.

Tell Only Trusted Professionals

Only share your concerns with a mental health professional until you have a confirmed diagnosis. Mental health professionals understand the nuances and complexities of DID and can offer appropriate care and advice.

Never Disclose to Doctors Unintentionally

Avoid mentioning DID to doctors or other medical professionals unless it is part of your documented medical history. Misinformation or premature disclosure can lead to misdiagnoses or stigmatization.

Be Cautious of Informal Disclosures

If you do find it necessary to discuss DID, ensure that you are speaking to someone you trust completely. Once information is shared, there is no guarantee that it will remain confidential. Friends, family members, or partners may not handle the information as you would hope, leading to unintended disclosures or reactions.

Case Study: The Consequences of Informal Disclosure

In my late 20s, early 2000s, I shared my understanding and experiences with DID with my then-best friend. Despite her initial acceptance, the conversation led to a cascade of unintended consequences. My friend’s parents were contacted by her parents after a phone call, resulting in a revelation of my personal struggles. This misinformation led to unneeded panic and a breach of my privacy. Additionally, the fallout from this incident strained our relationship, leaving me unhappy and disillusioned with those who could not handle such sensitive information.

Conclusion

Discussing DID is a delicate process. It is crucial to prioritize confidentiality and ensure that only trusted professionals are involved in the process. Delaying the sharing of this information until a formal diagnosis is made is a wise choice. While it can be challenging to navigate these conversations, your mental health should always take precedence.