Preparing for Your Autism Evaluation: A Comprehensive Guide

Many factors contribute to the accuracy and effectiveness of an autism evaluation, and proper preparation can significantly enhance the process. This guide will provide a step-by-step approach to help you prepare for your autism evaluation, ensuring you are as informed and comfortable as possible.

1. Educate Yourself on the Signs of Autism

The Diagnostic and Statistical Manual of Mental Disorders (DSM-V) provides formal criteria for diagnosing autism, but it's equally important to understand how these criteria manifest in day-to-day life. Autistic individuals, their advocates, and researchers often provide valuable insights into what it means to live with autism. For instance, you might read articles by autistic bloggers who describe their unique experiences and detailed observations of their behaviors and thought processes.

Consider keeping a list of the behaviors, thoughts, and experiences that align with the DSM-V criteria, as this will help you during the assessment. The psychologist may ask about specific incidents that relate to the criteria, and being prepared with anecdotes from your life can provide a personal context.

2. Reflect on Your Life Experiences

Austrainer psychologists may prompt you to share stories or examples that demonstrate aspects of autism. For instance, a story about engaging in repetitive behaviors (stereotypy): "Every morning, I wake up and dance to the exact same three songs, and I never vary the routine or the order of songs. This provides me with a sense of comfort and routine." Having such anecdotes ready can help you communicate effectively.

Writing down your thoughts or anecdotes can be particularly helpful if you struggle with spontaneous speech. You can prepare scripted responses or bring pre-written notes to the assessment. Remember, the goal is to communicate clearly and comprehensively, and your psychologist will be patient and understanding.

3. Utilize Online Self-Assessments

Digital tools like the RAADS-R, AQ, and Short Autism Screening Tests can provide a preliminary understanding of your traits and where you might fall on the autism spectrum. These assessments, while not official diagnoses, can offer valuable insights. Save your results and print out the questions and your responses. This detailed record can be extremely beneficial for your evaluation and can help clinicians better understand your unique situation.

4. Manage Anxiety and Emotions

Anxiety and nervousness are common before an autism evaluation, regardless of the outcome. It is perfectly normal to feel this way, especially if you are aware of specific signs of autism in yourself. Common fears include worries about being taken seriously and concerns about self-identity.

Consider speaking with a trusted loved one about your feelings. Indulge in activities that make you feel relaxed, such as listening to music, spending time with a pet, or engaging in a favorite hobby. These actions can help you feel more at ease during the evaluation.

5. Prepare Logistically

The evaluation will likely take several hours, so dress comfortably and bring necessary items like your comfort items or self-calming tools. Ensure you are well-rested and hydrated before the assessment. Pack additional items that can help manage any anxiety, such as a stress ball, a blanket, or calming music.

Consider the weather and dress appropriately, bringing a sweater if it may be air-conditioned. Being prepared can help you navigate the day and feel more in control.

During and After the Assessment

1. Share Your Fears and Concerns

Be open about any fears or concerns you have regarding the evaluation process. It is completely normal to feel this way, and your psychologist will be patient and understanding. If you feel nervous, it's okay to express these feelings. Discuss your worries about the diagnosis process, and be honest about your current thoughts and feelings.

2. Embrace Your Authentic Self

Stimming (such as rocking or flapping) is a natural and common behavior for many autistic individuals. You are allowed to engage in these actions during the assessment. Dress comfortably, act naturally, and express yourself fully. Even if you have learned to adapt and fit non-autistic social norms, the evaluation is about understanding your unique needs and experiences. It's okay to say, for example, "I know I can have conversations, but sometimes I find it challenging to look people in the eye or maintain eye contact."

3. Discuss Co-Occurring Conditions

Many autistic individuals also experience other conditions such as anxiety, depression, epilepsy, and sensory processing disorders. Your psychologist may be able to assess these conditions or refer you to a specialist. It is important to be open about any symptoms or concerns you may have. You might say, "I often experience intense feelings of anxiety, which can be overwhelming at times."

4. Be Open to Different Diagnosis Possibilities

While it is possible to be mistaken for having another condition, it's also possible that you might not receive an autism diagnosis. This does not change your worth or value. If you are concerned about a potential misdiagnosis, it is important to express your concerns openly. You might say, "I have some anxiety about whether the diagnosis will be accurate, and I'd like to discuss this with you more."

5. Advocate for Your Needs

Tell the psychologist if you need more time to process information, require a break, or have any other special needs. You can also ask about any accommodations that might be available to you. For instance, you might ask, "Would it be possible to have a note-taker for lectures or to take tests in a quiet room with extra time?"

6. Process the Results

After the assessment, take time to process the results. A diagnosis does not define you as a person and does not negate the experiences you've had. Allow yourself to adjust to the information and consider seeking additional counseling or support to help with this process.

7. Remember Your Self-Worth

No matter the outcome of the evaluation, remember that you are a valuable and contributing member of society. Whether autistic or not, you have unique strengths and qualities that make you who you are.

Conclusion

Preparing for your autism evaluation can be a challenging but rewarding process. By educating yourself, reflecting on your experiences, and managing your emotions and logistics, you can ensure that you are well-prepared and comfortable during the assessment. Remember, the goal is to gain a better understanding of yourself and any needs you may have. With the right preparation and mindset, you can navigate this process effectively and make informed decisions about your well-being.