Seizure-Free After Epilepsy Surgery: My Journey and Expert Insights

After my brain surgery a couple summers ago, I had my scar tissue removed from my brain, which was causing my seizures. This rare case of epilepsy, where I would only get one grand mal seizure every 4-5 months, is detailed in this article. My surgeon informed me that there was an 86.45% chance of being seizure-free from this surgery.

My Journey to Seizure-Free

Fast forward a year and a half later, and I had no seizures, allowing me to call myself seizure-free based on my case. This brings to light the good chances one might have of being seizure-free after brain surgery, especially for individuals with epilepsy. However, it's always wise to consult with a professional neurologist to determine the exact percentage and suitable surgery.

I've had two surgeries and have gone over 4 years without a seizure. Still, my doctor hesitates to say 'seizure free'. The first surgery didn't work as expected, but the second one made a significant difference. I've even stopped taking my seizure medications, something my epileptologist did not agree with. After two years of zero seizures, I felt the benefits outweighed the risk. What I learned from my journey could be beneficial for others considering brain surgery for epilepsy.

My doctor initially suggested brain surgery, and my immediate reaction was a big 'NO'. My concern was that the surgery might leave me not 'all there' afterward. In reality, my problem was in the left temporal lobe, which involved removing a section about the size of a golf ball. Potential risks were discussed, but I've found that there were no such complications. I am now driving and excelling in my classes, something that has been challenging for me before.

Brain surgery has come a long way since my surgery back in 1993. I took a year to recover but others were back to work shortly after. Recent advancements allow surgeons to operate at the brain-cell level. This highlights the importance of seeking the most advanced medical care available.

While I am seizure-free, my epilepsy is still present. This means I will continue to take medication for the rest of my life, albeit at a reduced dose according to my doctor's advice. While I've come a long way, the road to being completely medication-free is a goal I aspire to achieve.

My story is a testament to the potential benefits of epilepsy surgery, but it is crucial to approach it with a realistic mindset and post-surgery care. Consulting with a neurologist can help individuals make informed decisions about their health. If you or a loved one is considering epilepsy surgery, it's essential to explore all options and understand the potential outcomes.