Seizure Warning Signs Years Before an Event

Seizures can be terrifying and unpredictable, but understanding the potential warning signs can provide a sense of security and help in managing the condition more effectively. We often hear about immediate warning signs just before a seizure, but can there be signs manifesting years before an event?

Personal Experience

Around 12 years ago, I experienced a strange sensation that felt almost like being in a dream. The experience was frightening and lasted what felt like a few minutes but was actually no more than a couple of seconds. This bizarre episode would occur approximately once every 3 to 6 months. I mentioned these episodes to my doctor, who didn't see a reason for concern.

Two years before the first UK COVID-19 lockdown, I woke up to find three paramedics, described as very attractive, standing by my bed. A seizure had occurred while I was asleep. I was taken to the hospital, where a few tests were conducted. Despite the all-clear diagnosis, I was banned from driving for 12 months and prescribed epilepsy medication. A specialist evaluated me shortly thereafter and pointed out that the dream-like states I experienced were almost certainly partial focal seizures, often precursors to more severe seizures.

Understanding Seizure Auras

The concept of predicting seizures years in advance is largely theoretical. However, some individuals experience what is known as an aura or a warning sign just a few seconds before a seizure, which is called a simple partial seizure. During this time, the person remains conscious and might experience a variety of sensations such as flashing colors in their eyes or a nervous feeling in their stomach.

My experience aligns with this description. Prior to more severe seizures, I would experience these dream-like episodes, which my neurologist identified as partial seizures. After learning this, I developed a technique to tighten all my muscles and clench my hands into fists for a few seconds. This technique has proven effective in stopping the onset of more serious seizures many times over.

Current Perspective

As of now, seizures cannot be predicted in the general population under normal circumstances. However, in certain rare cases or highly controlled environments, such as in a hospital setting, they can sometimes be predicted.

Understanding the nature of partial seizures and their symptoms can empower individuals with epilepsy to recognize these warning signs and take appropriate actions to mitigate the severity of future seizures. Whether these warning signs are experienced years before a more significant event or just a few seconds before, awareness and preparedness are crucial for managing this condition.

Conclusion

The experience shared here highlights the importance of recognizing and understanding seizure warning signs. While predicting seizures years in advance is still a matter of speculation, knowing about the immediate precursors like auras can significantly improve safety and preparedness. If you or someone you know experiences unusual symptoms that may be associated with seizures, it is important to consult a neurologist or an epilepsy specialist for proper evaluation and management.