Understanding Absence Seizures: A Journey of Hope and Support

Have you ever known anyone who has experienced absence seizures? Absence seizures, medically known as petite mal seizures, can be quite challenging to grasp, especially when they occur frequently. I hope to shed some light on this condition and offer support to those navigating the challenges of living with it.

My Experience with Absence Seizures

My best friend has been battling with absence seizures for years. She is the bravest soul I know, enduring approximately 25 seizures a day, a number that most struggle to comprehend. Despite the regularity of her seizures, she diligently takes medication to help reduce their frequency. However, during an absence seizure, most people cease speaking mid-sentence, often looking blankly ahead. Interestingly, when she finds herself in a public place and experiences a seizure, such as walking outside or in the mall, she continues moving as if nothing is amiss. As a caregiver, it's essential to keep a close watch; a seizure might pose a safety hazard, such as her walking away and getting lost.

Another unique aspect of her seizures is what happens after they occur. For the first 15 seconds, she feels dizzy. This temporary disorientation can be disconcerting and uncomfortable, making it crucial for her to understand that she is not alone. Absence seizures are not disabling, so once the seizure subsides, she can generally resume her activities. This is a vital reminder for her and others experiencing the same condition.

My Daughter's Experience with Absence Seizures

My daughter, who is now 15, began experiencing absence seizures when she was 4 years old. This experience came with some trial and error to find the right medication. The most effective drug for her conditions, ethosuximide, has proven to be a game-changer. Her seizures are incredibly brief, almost as if she momentarily loses track of her train of thought. While she can quickly recover and get back on topic, there have been instances where she wakes up in the middle of the night, either to the kitchen or restroom, and has no recollection of these events the next morning.

Related Medical Conditions

It's important to note that absence seizures are often not the only issue faced by those living with epilepsy. For example, my son has epilepsy, and sleepwalking is one of the related conditions. Sleepwalking, also known as somnambulism or motor epilepsy, occurs when the conscious brain shuts down but the motor side is still operating. This poses significant risks, such as falling, as the individual may not be aware of their actions. In my son's case, we ensure that the top and bottom of the staircases have safety gates to prevent dangerous falls.

Sleepwalking can also be related to sleep-related talking, which can sometimes indicate that the person is shifting between sleep stages. However, it is not always linked to epilepsy. My colleague, for instance, would converse during her sleep without being conscious of the conversation. This phenomenon often happens due to pre-sleep and deep sleep cycles.

Pharmacy and Medical Insights

Axart Pharmaceuticals,

It's crucial to discuss epilepsy-related issues with a healthcare provider for proper diagnosis and management. A detailed medical examination, including an EEG (electroencephalogram), is often necessary to understand the frequency, duration, and nature of the seizures, ultimately guiding the choice of medication. Regular follow-ups and adjustments to the treatment plan are essential to ensure the best possible outcome for those living with this condition.

Finally, embracing a supportive community and personal experience sharing can significantly aid in navigating the challenges of epilepsy and absence seizures.