Understanding Joint Popping in EDS: Common Misconceptions and What To Look Out For

At the age of 33, receiving a diagnosis of Ehlers Danlos Syndrome (EDS) can be both overwhelming and confusing. One of the common concerns after receiving such a diagnosis is the constant joint popping that many individuals experience. But does this joint clicking mean subluxation, a partial dislocation? Not necessarily, and here's why.

Joint Clicking vs. Subluxation

Your joints can naturally click and pop, which is often due to air bubbles in the joint or a sudden snapping of the tendons and ligaments. In contrast, subluxation is a partial dislocation that can have a more pronounced and painful experience. When a joint subluxes, you can usually feel a large and sudden movement before it clicks back into place, and the area around the joint may ache or feel bruised afterwards.

Misunderstandings in the EDS Community

It's not uncommon for individuals in the EDS community to frequently mention subluxation, but it's important to note that many people might be misinterpreting their symptoms. It's crucial to differentiate between general joint clicking and actual subluxation to better understand the nature of your symptoms.

I myself have lived with EDS for my entire life and have only experienced subluxation a handful of times. I can physically pull my wrist apart, and my fingers often feel like they're on the verge of dislocating. Meanwhile, my hips sometimes click so loudly that they might be perceived as subluxation, but in reality, it's likely the large tendons and ligaments snapping over the joint and causing that sudden movement.

When to Seek Medical Advice

If you're experiencing severe pain when your joints pop or click, or if the joint remains painful after it has popped or clicked, it's advisable to consult a doctor. Persistent pain and discomfort should be evaluated to ensure there are no underlying complications or injuries.

By understanding the difference between joint clicking and subluxation, you can better manage your symptoms and ensure that any necessary medical attention is sought when needed. Remember, while joint popping can be unsettling, it doesn't always indicate a more serious condition like subluxation.

Conclusion

Receiving a diagnosis of EDS can be challenging, especially when dealing with uncomfortable symptoms like joint popping. Recognizing the difference between normal joint clicking and subluxation can help you manage your condition more effectively. If you have concerns about your symptoms, always consult with a healthcare professional for guidance and appropriate care.