Understanding and Managing Unresolved Proctitis: Causes, Symptoms, and Treatment Options

Living with a medical condition such as proctitis can be challenging, particularly when symptoms recur despite prescribed medical treatments. As a concerned 30-year-old with a diagnosis of proctitis, managing the condition and understanding its underlying causes is crucial.

Proctitis Diagnosis Following a Colonoscopy

During a routine colonoscopy, a professional gastroenterologist provided the diagnosis of proctitis. Proctitis refers to an inflammation of the rectum, which can be chronic and debilitating. When treated with local steroids, the symptoms temporarily subside. However, the underlying condition remains, causing the symptoms to return once medications are discontinued.

Understanding the Cause of Proctitis

The exact cause of what is often referred to as "ulcerative proctitis" is not fully understood in medical literature. Currently, it cannot be cured definitively. However, it does have a propensity to enter spontaneous remission at times. Treatment options commonly include steroids or aminosalicylates to achieve partial or complete relief of symptoms.

It is essential to discuss these aspects thoroughly with your treating physician. If you feel your queries were not adequately addressed, consider seeking a follow-up visit or engaging with a new healthcare provider who can offer a fresh perspective and comprehensive care.

Seeking an Alternative Diagnosis and Treatment

Ensure that your diagnosis has been thoroughly reviewed by an expert GI pathologist. If the diagnosis of idiopathic inflammatory proctitis is confirmed, explore alternative therapy options such as mesalamine suppositories or enemas. Discuss these options with your healthcare provider. An informed and collaborative approach can lead to better management of the condition.

Addressing Potential Triggers and Seeking Further Guidance

Consider the possibility of autoimmune issues exacerbated by triggers. The Crohns and Colitis UK website can provide valuable insights and additional support. If you are experiencing frequent urgency, they can assist you in obtaining a RADAR key to access public restroom facilities and provide other relevant information.

Ensure you are under the care of a specialized IBD nurse and a gastroenterologist consultant. They can provide expert advice and suggestions for your next appointment. Additionally, consulting a dietician can be beneficial for dietary questions and recommendations for special drinks when solid food intake is limited.

Proctitis is part of the Inflammatory Bowel Disease (IBD) spectrum. Managing it effectively can prevent the disease from progressing and spreading further up into your bowels. It is an ongoing process, and staying proactive with your treatment plan and healthcare team will be instrumental in your journey.

Conclusion and Support

Living with proctitis requires understanding, care, and ongoing support. By addressing the potential causes and exploring various treatment options, you can manage your condition more effectively. Remember to stay informed, proactive, and communicate openly with your healthcare providers.