Why Some People with Autism Spectrum Disorder (ASD) Object to the Term 'Autistic'

Everyone is different, and it's important to recognize that how individuals perceive and react to certain words, especially those related to their own experiences, can vary widely. This is particularly true for those on the autism spectrum (ASD).

Some individuals with ASD may dislike being called 'autistic,' and there are valid reasons behind these feelings. One common reason is the fear of being misunderstood or judged unfairly. At a job interview, for example, being labeled as 'autistic' might lead to unfair perceptions or hesitation from potential employers.

Other individuals might identify strongly with the ASD community and see themselves as part of a community of support and connection. They might feel a sense of belonging that surpasses the negative connotations of the term.

Some might have had negative experiences with people who were unkind or abusive towards them, leading to a strong aversion to the term. Conversely, some individuals might use the term to foster understanding and empathy among others.

Additionally, some might simply prefer to keep their personal information private, while others might not have given much thought to it at all. In some cases, individuals might experience complex feelings about the same subject, making it even more nuanced.

An example showcasing these complexities is my sister, who, despite being highly functioning in intellectual spheres, was late in receiving a diagnosis. She found immense relief in her diagnosis, as it helped her understand and accept her differences without the added stress of trying to fit into a mold she perceived as 'normal.' She is proud of her identity as an autistic person.

On the other hand, I have family members who strongly object to being labeled as autistic. We respect their wishes and always refer to them simply as 'people,' rather than using the term 'autistic.' This respect for their preferences is crucial in fostering a supportive and understanding environment.

The preference to be called 'autistic' over 'person with autism' can be deeply rooted in the identity of the individual. For me, 'autistic person' is a preferred term because it recognizes that my identity is integral to my being. To lose my autism would be to lose a fundamental part of who I am. My autism shapes my perception of the world, and I see it as a valuable aspect of my self.

In contrast, the term 'person with autism' can make me feel as though my autism is an illness or a condition that needs to be cured, which I believe is a misunderstanding of what autism truly is. The term 'person with autism' also implies that I need constant reminders to keep in mind that I am a person, which can be a painful and patronizing reminder.

It's important to recognize that there is no ultimate accounting for taste when it comes to how we refer to ourselves. What matters most is respectful communication and the recognition that each individual's journey and preferences are unique and valuable.